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Information For Carers & Parents

Carers need to take care of themselves too, both physically and psychologically. Those we care for have individual needs, unique to their autistic profile and all carers have requirements as well.  You may want to exchange information with fellow carers who empathise and understand.

  • Out reach organisations:

The Aylesbury Vale branch of the National Autistic society, The branch is being re launched at present

NAS South Bucks, Local support group aiming to inform and help parents and carers by: publishing a newsletter; running a club for school aged children; organising regular family activities; liaising with local services and raising awareness.

Email:southbucks@nas.org.uk  Website:www.nasbranch.org.uk/southbuckinghamshire

GRASPS Bucks, (Greater Resources for Autistic/Aspergers children Supporting siblings and Parents) G.R.A.S.P is a recently formed parent and family forum, supporting families affected by ASD and Aspergers Syndrome, in particular. We aim to hold regular outreach meetings in Aylesbury and North Buckinghamshire, with the primary objectives of sharing and exchanging information, providing empathy and support for one another’s’ families and help us all realise that we are not alone!

Contact: Claire Samways or Shoshana Willets on 01296 486 995 email:contactgrasp@gmail.com

SPACE support Chesham,

FACT Bucks,

(Families And Carers Together in Buckinghamshireis a group of parents and professionals who meet to discuss real issues that affect children and young people with additional needs and disabilities in Buckinghamshire

Email: admin@factbucks.org.uk

 Clearly Speaking, can put you directly in touch with other carers, who understand, empathise and care. For those living close to the Hertfordshire border, contact the Special Needs Support Group (SNPST), based in Tring, north west Hertfordshire: SNPST

Clearly Speaking is an approachable, professional, caring support service for families and front-line professionals who live in England. We operate right across the UK with families coming from as far as Carlisle, Wales and Cornwall just to attend our Centre for help specialist support for free, with services and intervention for those families living with special needs, Autistic Spectrum Disorders (ASD), Aspergers Syndrome and all other associated difficulties like D.A.M.P, ADHD, Global Development Disorder, specific learning issues like Dyslexia as well as Tourette’s Syndrome, EDS, Fibromyalgia to name a few. Janet Nicks, the project director can also offer additional specialist help such as Autism (ASD) diagnosis, customised therapy and CBT along with Salt, disability benefit applications/appeals and advice in accessing local agencies to support your further need where you might be struggling to make contact.

We run many activity groups throughout the year, including weekends and after school. Our activity groups to name a few include: Duke of Edinburgh Award Scheme, a gardening club (March to October), a Girls support group (8-18 years of age), a coping with relationships course (young people aged 12-21 years of age), Counselling service, Youth Clubs, Volunteering opportunities, Holiday activities and a special needs/disability Young People’s Forum, Board game Café, Knit & Chat for parents and carers, Adult social groups for those aged 18+ on the spectrum. All of these facilities and services can be applied for via our website.

Janet Nicks also personally does a variety of  regular support services including: The National Arts Award, curriculum based training and support sessions, work experience training, specialist support sessions and courses, support at meetings with schools, agencies and when appropriate SEN tribunals, individualise support and resources for children, young people and their families and a “One Stop Shop”.

Contact: Janet Nicks or Sonny Hawkins on 01280 824 871  Email:info@clearlyspeaking.org.uk Website:www.clearlyspeaking.org.uk Address: Clearly Speaking, London Rd, Buckingham, MK18 1AS

Venue Notes

Situated between Buckingham Secondary School and Swan Leisure Centre. Buses to and from Aylesbury, Milton Keynes, Oxford and Bicester stop directly opposite the centre

When Is It On?

Opening times vary according to booking, organised sessions and clubs.

Cost

We offer a small charge per activity group to pay for arts and crafts materials or the tuck shop. We encourage everyone who uses the diagnosis or tribunal services to donate towards the cost of paper, ink, Janet’s time, travel costs or volunteer if you are financially struggling. We will never directly ask anyone for money towards any services except for activity groups where discounts are available to those on benefits, retired or have more than one child attending.

Age Ranges

Junior Activities from Birth to 12 years

Senior Activities from 13 years to 16 years

Adult Activities from 16 years and over (no referral required)

Referral Details

You can be referred by local services or your GP, if you prefer. We encourage everyone however. to self refer by either completing our online form located on our website www.clearlyspeaking.org.uk or emailing us directly with your enquiry to info@clearlyspeaking.org.uk

Social Media Links

FACEBOOK: https//www.facebook.com/clearlyspeakingsupport?fref=ts

TWITTER: https//www.mobile,twitter.com/ClearlyCoolClub

GOOGLE+: https//plus.google.com/u/0/116375078385722469090

Information for families affected by autism, links to information resources, therapies, education, financial and legal matters, research papers and publications: Autism Links

Carers Bucks can direct you to support groups, more often than not, run by volunteers with first hand knowledge of the caring role and with a passion to reach out and help those they understand.

Dedicated to supporting carers: 0300 777 2722  www.carersbucks.org/support-groups/

Disability Living Allowance or PIP can be applied for in the name of your family member:  Click here to find out how to apply and access more information.

CARERS ASSESSMENT
A carers’ assessment can also be formally applied for via Buckinghamshire County Council.  Do ensure that the person you are caring for, is supported by the benefits that are relevant to their autistic condition.

CARERS’ RIGHTS

Click here to access the online Carers’ Rights guide. Download information, at the link location for: Benefits, Financial Help, Practical Help, Technology, Your Workplace and other help, nationally and in your area.

CARE ADVICE BUCKINGHAMSHIRE
Care Advice Buckinghamshire
is a website for adults in need of care and support in Buckinghamshire, their families and carers. You can find information and advice on ways to assess your own and your family’s needs.

CARERS DISCOUNT CARD

The card will give carers living locally some great discounts across a range of local businesses in the county from food & drink and leisure, to health & beauty and transport. Some well-known businesses have already signed up to the card including Frankie & Benny’s and Haven Holidays. For more information about how you can register for the Carers Discount Card please send an email to beth.sawyers@carersbucks.org or call 0300 777 2722

 

MINDFULNESS & MEDITATION
Treat your mind to a guided meditation exercise, click here for ‘HEADSPACE’, the online resource.

 

ANNUAL FLU JAB

Carers need to take care of themselves: If you are a carer and aged over 18 the NHS offer free flu vaccinations, (funded by NHS England). Ask your GP or pharmacy for further information. You may be asked to provide relevant documentation to confirm your caring role.